What can I do to help?
That is a question we get asked often, people just want to know what they can do to help us during this horrible time
To be honest, as much as we wish there was something, there really isn't much you can do to help :(
There are things that have made it easier over the past few years, a nice card in the mail, a loving message, an invitation to lunch/dinner....all of these things may seem like small gestures but they really do help to make it a little easier.
They help us to know you're out there and thinking of us, or to get our minds off things by going out for a meal and not having to think about it
Not so much for Johnny, but for me, I like it when people ask what is happening or what treatment we are up to. When people take an interested in learning about what we are going through it makes my feelings about it all feel a bit more validated.
Some days are so hard for some many different reasons (just had a doctors appointment, or heard a pregnancy announcement, someone had a baby, saw a pregnant woman rub her belly...so many reasons) and a simple text message with a 'hey, just seeing how you are' or a funny joke to make us smile can mean the world
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